Books

There must be a reason

Product Description
Carol’s gripping story begins 29 years ago when, as a teenager, she asks to have her nose surgically altered. But before plastic surgery can be performed, her world comes crashing down around her when she receives shocking news-she has a rare disease, Wegener’s granulomatosis.Though the treatments take their toll on her body, and the disease ironically changes the shape of her nose, Carol refuses to let it destroy her spirit. Meanwhile, her mother’s persistent efforts to find information and support for herself led to today’s international Vasculitis Foundation.Learn how to make the healthcare system work for you. Find out the value of second opinions and how a positive attitude can save your sanity. See how compassionate relationships are vital to this patient’s recovery.Told through the eyes of her mother, Myrna, this moving and personal story, which details their journey from darkness to hope, is not only inspiring but a valuable source of information for anyone touched by a serious chronic illness.

About the Author
Myrna Swart, whose daughter, Carol, was diagnosed with Wegener?s granulomatosis 29 years ago, juggled family and a job while writing this book. She helped form the current Vasculitis Foundation, served on the board of directors, led the Los Angeles chapter and wrote a how-to manual for starting groups. Currently the south Florida group leader, she brings inspiration and answers to those coping with long-term chronic illness.

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Eye On The Prize: Fighting Past Wegener's Granulomatosis

This is the story of a young woman’s frightening, and eventually disabling illness, which started as eye problems, vocal problems, then turned into lung, joint, skin, and kidney failure. She was convinced that somehow this was all her fault as a result of an event that had occurred in her younger years, until one persistent doctor got to the root of all of the problems: Wegener’s granulomatosis. The illness was finally diagnosed in 1987, and years of aggressive treatment followed with chemotherapy. Not wanting to sit around, she decided to put her unfortunate life circumstances toward a purpose of helping others and to go to school, but found that this would be another fight, as funders were often opposed to this dream for many reasons. She kept her eye on the prize, and although it was not easy, and oftentimes, suffered health crises throughout college, and graduate school, did obtain her goals by 1995. This book is written for those who suffer from Wegener’s granulomatosis to help them to feel less isolated, or for anyone with a disability to show it is possible to stay on course with their goals. Although it may seem like you are climbing the highest mountain, you can achieve anything you set your mind to.

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Wegener's Granulomatosis Medical Guide

Product Description
The Wegener’s Granulomatosis Medical Guide is a publication which has been designed to better help readers understand Wegener’s Granulomatosis. This Qontro Medical Guide has been designed with the reader in mind, and is a useful information source for readers at all levels looking to learn more about Wegener’s Granulomatosis. The Wegener’s Granulomatosis Medical Guide is highly recommended for those interested in understanding and learning more about Wegener’s Granulomatosis.

About the Author
Qontro medical guides are professionally written, designed and published with great care and with the goal of providing desired medical information to readers around the world. These publications are highly recommended for individuals who are looking to further their understanding and knowledge. Each book also includes information on how to access online versions of the materials which can be downloaded and used for those who also enjoy reading books online and portably through laptops and pdas.

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Vasculitis: Sick & Tired Of Being Sick & Tired

Product Description
Your life couldn’t be more perfect than it is right now. You are young and, as far as you know, healthy. You are happily committed to your better half, and the two of you are about to be parents for the very first time. Elated by your dreams for the future, your anticipations elevate to the point you feel untouchable. You are on top of the world and no one can bribe you to come down. If only life stayed that consistent. If only life was really that kind. If only you were as untouchable as you think you are.

Vasculitis: Sick and Tired of Being Sick and Tired is a candid, humorous, straightforward, no-nonsense autobiography written by first-time author, Sheri Lyn Schwar. Shortly after giving birth to her daughter, the world Sheri arrogantly stood on started to give way, crumbling beneath her, whisking her down an avalanche of health troubles. Told she may die of a rare autoimmune disease, a type of Vasculitis called Takayasu’s Arteritis, Sheri refuses to let her disease define her.

If you’ve ever been faced with a potentially life-threatening disease, you will find reassurance, comfort, vindication, validation and plenty of laughs within these pages.

About the Author
Sheri continues her journey through life, occasionally tripping every now and again, with the love and dedication of her husband, Ron, daughter, Montana, and the family’s two Pugs, Frodo and Eli, by her side, every step of the way.

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Coping With Prednisone

Product Description

Approximately one million Americans per year take high doses of prednisone and related drugs (glucocorticoids) to treat serious illnesses and conditions ranging from asthma to rheumatoid arthritis to kidney disease to organ transplantation. Wile these medicines may have unpleasant, even devastating side effects, including gastrointestinal problems, intense mood swings, changes in hair and skin, and increased susceptibility to infection, they may also be the only treatment available for serious or life-threatening illnesses.

When the world-renowned flutist Eugenia Zuckerman was prescribed prednisone to combat a rare lung disease, she teamed up with her sister, Julie R. Ingelfinger, a well-known specialist in pediatric nephrology and hypertension at Massachusetts General Hospital in Boston, to write the first ever, comprehensive guide for patients undergoing this difficult treatment.

Packed with everything your doctor didn’t have time to tell you, including recipes, exercises, and tips based on personal experience, Coping with Prednisone is an invaluable handbook for health-care workers, caregivers, and especially for patients themselves.

About the Author

Eugenia Zukerman is an internationally renowned flutist, the arts correspondent for CBS-TV News’s “Sunday Morning,” and the writer of many articles, two novels, and several screenplay. She lives in New York City.

Her sister, Julie R. Ingelfinger, M.D. , is chief of the Division of Pediatric Nephrology at Massachusetts General Hospital, directs her own research laboratory, and is an associate professor of Pediatrics at Harvard Medical School. Julie has written more than 130 articles, authored a book on pediatric hypertension, and is the editor of a textbook that comes out every other year, Current Pediatric Therapy. She lives in Boston.

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Product Description

Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. ReadingLife Disrupted is like having a best friend and mentor who truly does know what you’re going through.”

About the Author

“Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived—they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness.

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Product Description

Fragments for a History is an astounding collection of drawings by Mia Nolting and eloquently demonstrates the emotional issues and struggles of young adults with cancer. The penetrating and inspiring artwork probes the heart, and reveals the endurance and patience required through the journey of fighting to be well while many slip through the cracks of the healthcare system. This inspiring book will also resonate with patients in other age brackets and with other intense chronic diseases, or with anyone who has faced a challenge in life.

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